Health
Study Reveals Epilepsy Prevalence & Treatment Barriers in Uganda, Urgent Need for Awareness & Resources
Published
3 years agoon
By
Mak Editor
By Davidson Ndyabahika & Julius Mugaga Tukacungurwa
A new study conducted in Uganda has unveiled the prevalence of epilepsy and identified significant barriers to treatment. The study conducted by Makerere University School of Public Health in partnership with Ministry of Health and Duke Global Neurosurgery and neurology, utilized community-based screening methods, found that urgent action is needed to increase awareness and allocate more resources to address this pressing public health issue.
Nearly 80% of individuals with epilepsy reside in low- and middle-income countries (LMICs), and a staggering 75% of those with epilepsy in LMICs do not have access to treatment. This alarming trend is further exacerbated by the stigma surrounding epilepsy, which often leads people to avoid seeking medical care due to fear of discrimination or social ostracization. The study underscores the urgent need to address the barriers to treatment, including stigma, and allocate more resources to improve epilepsy care in LMICs.
By providing a community-based descriptive statement about epilepsy in Uganda, this study sought to contribute vital information for intervention planning, addressing the urgent need for increased awareness, support, and access to treatment for people living with epilepsy in Uganda.
At the Epilepsy National Prevalence Study Dissemination and Dialogue meeting held on Wednesday, April 5, 2023 at the Golden Tulip Hotel in Kampala, Professor Anthony Fuller, the USA & Duke Neurosurgery Principal Investigator, revealed concerning findings.
The study unveiled that the national prevalence rate of epilepsy in Uganda is alarmingly high at 1.69 per cent, indicating that over 770,000 Ugandans are living with the disease. Professor Fuller’s presentation shed light on the urgent need for increased awareness, support, and intervention for those affected by epilepsy in Uganda.
During the investigation, participants were asked about their experiences with epilepsy, including symptoms such as shaking, falling, loss of consciousness, bladder control, and abnormal sensations. These questions were part of the primary screen in Phase One of the study, aimed at gathering information on epilepsy-related experiences in the past year.
With a meticulous screening process, the study examined 35,056 individuals suspected to have epilepsy, of whom 2,284 were found positive for unadjusted epilepsy, translating to a prevalence rate of 6.52% in the primary phase.
In the secondary phase, 732 individuals were confirmed positive for unadjusted epilepsy, resulting in a prevalence rate of 2.09%. In this phase, participants were asked about the frequency of attacks, occurrence in children during fever, and association with malaria-related hospitalization. These questions sought to gather additional information to aid in assessing and analyzing the nature and context of participants’ experiences with epilepsy.
Through rigorous clinical validation, including Neuro validation and electroencephalogram (EEG) tests, 594 individuals were confirmed to have epilepsy, bringing the final prevalence rate to 1.69%.
In the Central region, out of 11,746 individuals screened, 198 were confirmed positive for epilepsy, while 11,548 were negative, resulting in a prevalence rate of 1.69%. In the Eastern region, 125 out of 5,776 screened were positive, with a prevalence rate of 2.16%. In the Northern region, 68 out of 5,037 screened were positive, resulting in a prevalence rate of 1.35%. Lastly, in the Western region, 203 out of 12,497 screened were positive, with a prevalence rate of 1.62%.
These regional findings shed light on the distribution of epilepsy cases in Uganda and highlight the need for tailored interventions and support at a local level. “The epilepsy prevalence is unevenly distributed, ranging from zero to over 5% in specific districts,” says study report.
Dr. Fredrick E Makumbi, an Associate Professor and a Ugandan Principal Investigator for the study from MakSPH, highlighted the gap in community awareness regarding epilepsy treatment, leading to an increased prevalence rate.
He pointed out that the youth, aged 18 to 35, had a prevalence rate of 2.37 percent, while those aged 36 to 60 had a prevalence rate of 2.33 percent. Along with other investigators and participants, Professor Makumbi emphasized the need for further studies to identify driving factors and take equitable action.

Dr. Angelina Kakooza Mwesige, a Co-Principal Investigator for Uganda who is also a Senior Lecturer and Paediatric Neurologist in the Department of Paediatrics and Child Health, Makerere University School of Medicine noted interesting gender regional variations of epilepsy with higher prevalence in women compared to men.
In the Eastern region, the prevalence rate was higher in females at 2.40% compared to males at 1.97%. Similarly, in the Central region, the prevalence rate was 1.81% in females and 1.53% in males. In the Northern region, the prevalence rate was 1.33% in females compared to 1.37% in males, while in the Western region, it was 1.54% in females and 1.72% in males.

This revelation according to Dr. Kakooza has prompted further consideration for conducting a specialized study to investigate the underlying factors contributing to this statistic.
“We found the overall prevalence rate is 1.73% in female compared to 1.63% in male. We do not know the reason yet but we are investigating this. Also, what we found out, the medicine that can help treat this disease and the trained specialists are not enough. We need to ensure equal and free access to medicine for all. I appeal to all Ugandans, a person with this disease, just like any other disease deserves our support and care,” said Dr. Kakooza.
Dr. Daniel Kyabayinze, the Director of Public Health at the Ministry of Health -Uganda, thanked the researchers for the great study and acknowledged that epilepsy requires lifelong treatment and highlighted the need to continuously provide treatment for all those affected.
According to Dr. Kyabayinze, the government plans to use the study’s findings to estimate the treatment needs, and Kyabayinze expressed confidence that further examination by Makerere University School of Public Health’s partners will help identify associated factors, such as potential agents or organisms, that can be modified to combat epilepsy. He also noted that while some individuals are already receiving treatment, many Ugandans face challenges in affording the necessary treatment for epilepsy.
Dr. Kyabayinze emphasized the importance of placing mental health specialists in various locations across the country to ensure access to services, stating, “There is also a need to intensify sensitization efforts to avoid stigmatizing people with epilepsy and ensure they receive the services they need.”

Ms. Nina Mago, Founder and Program Advisor of Purple Bench Initiative, underscores the need policy makers to prioritize healthcare needs of individuals with epilepsy to needs of people with epilepsy. She emphasizes affordable access to good quality medication.
“When you have medication, you have less seizures and you become more confident on being independent, to participate in activities which may include going to school, holding up a job, social interaction but all this is possible when there is also strong awareness,” says Nina.
Ms. Mago, says epilepsy is a life-threatening condition; “I came up with a connotation of a phone battery, as a notification of battery low shows up, equally relates to a life about to be lost.”
Dr. Olaro Charles, the Director Health services – Clinical in the Ministry of Health stated that epilepsy remains one of the common mental health conditions in Uganda. He said that they have just concluded a joint review mission and found out that from all their mental health facilities, epilepsy constitute to almost 55.4% of patients.
“If you look at 2019/2020 they were about 314,000 then came to about 340,000 and then last year it was 251,000. This mapping however is very important because it helps us to plan for care. If we do the same in those regions with high prevalence, we may be able to plan well”. Dr. Oralo.
Dr. Sarah Nekesa, Executive Director of Epilepsy Support Association Uganda, called on members of Parliament to increase the budget for mental health drugs, including epilepsy medication, and ensure their availability. She emphasized the need for integrating epilepsy services with other healthcare services to improve accessibility.

Additionally, Dr. Nekesa highlighted the importance of grassroots awareness to combat stigma, and urged the government to allocate adequate human resources and support from health workers to encourage peer talks and build confidence among people living with epilepsy.
“We should increase the drug availability in health facilities and make sure that a person with epilepsy is able to get medication whenever they need it. Epilepsy is not understood by everyone so if everybody understands epilepsy it would be easier for treatment and stigma to go down and integration of epilepsy in every service that is given to the community”. Said Dr. Nekesa.

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Health
2nd AI in Health Africa Conference, Not about Tech but the Vulnerable
Published
3 days agoon
November 6, 2025
The two-day 2nd Artificial Intelligence (AI) in Health Africa Conference that kicked off today in the Main Hall, Makerere University has been described as not being about technology but about people – the vulnerable communities bearing the burden of infectious diseases and other health challenges – and the promise AI holds as a panacea. Officially opened by Hon. Dr. Monica Musenero, Minister of Science, Technology and Innovation the conference will be held under the theme “Setting AI for Sustainable and Inclusive Health Systems in Africa”.
Africa Must Enter the ‘Evil Forest’
In her now characteristic style of speaking from the heart, Hon. Dr. Musenero observed that Africa has from the first industrial revolution to the current fourth and impending fifth industrial revolutions experienced emotions ranging from non-recognition, rejection and skepticism to the current consumption with awe. This current emotion, though receptive unlike previous ones, continues to position Africa at a disadvantage economically, she noted.

“We are positioning ourselves to disadvantage in skill; we have positioned ourselves at the consumption end and we’ve stood in awe of this technology,” she observed, using the example of the amount of admiration a user who whips out the latest iPhone 17 attracts from those around them. “We respect you for your iPhone 17, but I would be happier if you were able to design and manufacture iPhone 5” intimated Hon. Dr. Musenero.
The Minister urged fellow scientists to wake up to the realization that the future of Africa lies in their hands. “We can no longer be passive participants, we can no longer reside on the shallow end of science; we must be willing, as I said when I was here last week, to enter the ‘evil forest’”.

The ‘evil forest’ is Hon. Dr. Musenero’s analogy of Africa’s perception of current technology ecosystem drawing parallels with scenes often dramatized by Nigerian Movies. She notes that though depicted in these movies as scary and potentially dangerous, the ‘evil forest’ is loaded with hidden treasures, necessitating resilience and wisdom for one to navigate the pitfalls until they discover the treasure trove. Upon discovery, the value of this treasure has the potential to turn around the fortunes of the family, community or entire kingdom. Entering the ‘evil forest’ therefore, is her way of encouraging scientists to go beyond adapting imported technology for local use to understanding how it works enough to develop homegrown solutions.
Building AI Capacity through Synergy
Representing the Vice Chancellor, Prof. Barnabas Nawangwe, the Academic Registrar, Prof. Buyinza Mukadasi concurred with Hon. Dr. Musenero that Uganda needs to accelerate investment capacity in AI, if it is to be used as tool to manage health challenges. He nevertheless underlined the steps Makerere has undertaken to close the gaps by hosting units such as the Infectious Diseases Institute (IDI), AI and Health Lab, Innovation Pod, while working with various partners.

“We want to renew our commitment that we shall continue to translate our research findings into service delivery and products that improve the livelihoods of our people,” pledged Prof. Buyinza, who also noted that this will be undertaken within institutional ethical guidelines and policies, bolstered by good practices and recommendations arising from the conference.
Taking cognizance of contributions of various partners to strides made so far, the Permanent Secretary Ministry of ICT and National Guidance, Dr. Aminah Zawedde who was represented by Mr. Ambrose Ruyooka, the Ministry’s Head of Department of Research and Development, thanked the Makerere University AI Health Lab, IDI, Health AI for All Network, the Research and Innovation Fund, the African Population and Health Research Centre, and the Mastercard Foundation for convening the second edition of the conference.
“This year’s theme aligns perfectly with Uganda’s digital transformation vision. It reminds us that while innovation is powerful, true progress lies in ensuring it is equitable, ethical, locally relevant, and accessible to all” read Dr. Zawedde’s remarks.

She noted that when used responsibly, AI empowers healthcare workers to do more with greater precision and efficiency while extending services to under-served communities, essentially amplifying their impact whilst preserving the essential human touch that defines care. Dr. Zawedde reiterated the Government of Uganda’s commitment to positioning AI as a catalyst for national development and improved service delivery through the national AI governance framework. “By the end of 2025, we expect to reach a decision on whether to adopt a comprehensive AI policy or a flexible, sector-led regulatory approach.”
Referring to projects already underway at the College of Computing and Information Sciences (CoCIS), the Principal, Prof. Tonny Oyana underscored the great promise AI holds for not only improving affordability but also diagnosis of disease. He nevertheless called for targeted investment in data centres so as to build the required capacity to process the large amount of data that AI thrives on.

The Executive Director IDI and conference Co-Chair, Dr. Andrew Kambugu described the conference timing as “impeccable”. Citing a recently convened conference on Communicable and Non-Communicable Diseases that discussed Universal Health Coverage, he shared “there are people in this country who are one step away from disaster because of health.”
He therefore paid tribute to his conference Co-Chair, Dr. Rose Nakasi, whose AI-automation work with the light microscope, one of game-changing inventions in human medicine to-date, has improved precision, accuracy and efficiency in diagnosis of malaria, tuberculosis and cancer in healthcare facilities. Dr. Kambugu therefore urged his audience to always be eager to learn about the capabilities game changing tools such as AlphaFold.

“Our African Centre of Excellence in Bioinformatics & Data Intensive Science (ACE) in collaboration with CoCIS has been one of the first trainers of AlphaFold in Africa” remarked Dr. Kambugu. He added that the to ensure inclusive training ACE has attracted funding to support the She Data Science (SHEDS) project, an initiative that offers MSc and PhD fellowships to Ugandan women in the fields of data science and bioinformatics, with a strong emphasis on health data.

How Ocular is shaping healthcare
Conference Co-Chair and Principal Investigator of Ocular, Dr. Rose Nakasi noted that their project that aims at empowering healthcare professionals with AI-powered microscopy was motivated by the fact that wrong diagnoses have a cascading effect on prescription, treatment, recommendation and surveillance services. “Where health practitioners have been taking 30 minutes or more to diagnose malaria, and days to diagnose cancers, we are slashing down that time to literally 5 seconds to diagnose and make a recommendation.” She added.
Dr. Nakasi added that beyond diagnosis, the Ocular project is supporting the Ministry of Health with more precise surveillance and monitoring of diseases by quicker augmentation of information for faster roll-out of interventions as opposed to current weekly or monthly reporting period required by the Digital Health Information System (DHIS 2).

“The beauty about AI is that it has the capability not to just learn with one dataset but also provide insights on different pieces of data – for diseases such as malaria where climate has an effect, we want to integrate climate datasets and seasonality aspects so that interventions by Government are timely and targeted to specific locations.”

Beyond the plenary sessions, the 2nd AI in Health Africa Conference will feature abstract presentations, a Makerere AI Health Lab Showcase, Breakout Sessions, Workshops, Masterclasses and a hackathon for prototypes developed during the conference. Please see downloads for a detailed concept and programme.
Health
NACNDC & 19th JASH Symposium Breaks Silence on Mental Health in Schools & Universities
Published
6 days agoon
November 3, 2025By
Eve Nakyanzi
The Ministry of Health (MoH), Makerere University School of Public Health (MakSPH), Makerere University College of Health Science (MakCHS) and other partners are jointly hosting the National Annual Communicable and Non-Communicable Diseases (NACNDC) and 19th Joint Annual Scientific Health (JASH) Conference 2025, running from 3rd to 7th November. Ahead of the official opening on Wednesday, 5th November, a Mental Health Pre-Conference Symposium was held under the theme “Breaking the Silence: Advancing Mental Health Awareness and Resilience,” with a sub-theme on “Advancing Mental Health in Schools and Universities — Research and Policy Perspectives.” The session, held at Victoria Hall, Speke Resort Munyonyo, brought together mental-health experts, policymakers, researchers and education stakeholders to explore how learning institutions can strengthen emotional well-being, resilience and support systems for young people across Uganda.

Speaking as Guest of Honour, Justice Duncan Gaswaga of the African Court on Human and Peoples’ Rights urged stakeholders to recognise the deep connection between mental health and human rights, noting that mental well-being cannot be separated from the social and economic realities in which people live. He commended the theme on “breaking the silence,” arguing that open conversations and early prevention offer the most cost-effective path to protecting communities, especially learners. Drawing from his judicial experience, he shared first-hand accounts of emotional trauma faced by judges who regularly encounter distressing evidence in court, including cases from the LRA conflict, and observed that legal professionals, like health workers and teachers, are not immune to psychological strain. Justice Gaswaga raised concern over rising mental-health challenges in schools and universities, citing data showing increased depression, substance use, and emotional distress among students, particularly girls. He attributed these trends to pressures such as long study hours, parental absence, peer influence, online risks, poverty, and untreated trauma. He called for stronger government funding, implementation of school mental-health policies, closer parental involvement, and coordinated action across sectors, adding that legal reforms, including debate on decriminalising attempted suicide, may be necessary to ensure individuals can seek help without fear of punishment.

The Deputy Inspector General of Government (IGG), Mrs. Anne Twinomugisha Muhairwe emphasised the urgent need to prioritise mental health across all sectors, noting that society often treats the subject as taboo despite its profound impact on productivity, ethics and service delivery. She argued that mental well-being is not only a personal concern but a governance issue, pointing out that health workers, who shoulder enormous responsibility, also require structured support systems to safeguard their psychological welfare. Citing recent incidents, including a case in Masaka where a patient reportedly died after a medical worker allegedly refused treatment over a payment dispute, she warned that unresolved mental-health challenges can influence behaviour and decision-making in critical service spaces. The IGG further highlighted a link between mental health and corruption, suggesting that addressing emotional strain and psychological pressures among public servants could contribute to ethical conduct and better public service outcomes. She encouraged continued engagement on the topic, calling for mental-health considerations to be integrated into anti-corruption strategies and institutional reforms, and expressed readiness to contribute more deeply to future discussions.

Delivering the keynote at the Mental Health Pre-Conference Symposium, Dr Racheal Nuwagaba of Makerere University urged stakeholders to confront mental health as it is today and abandon siloed approaches, calling for full integration of services into primary health care and evidence-led policy. She said nearly two decades of clinical practice and teaching have shown her that young people carry mounting pressures, highlighting Uganda’s youthful demographics and pointing to drivers such as sleep deprivation, academic strain, abuse and neglect. Citing recent trends, she warned against sensational statistics and urged clear differentiation between mild, moderate and severe symptoms, noting post-COVID rises in depression, higher burdens among refugees and significant risks for girls and senior students. Dr Nuwagaba stressed the frequent co-occurrence of mental illness with addictions and physical conditions, explaining that untreated disorders worsen over time and can impair brain function, while treatment and adherence improve outcomes. She encouraged mindfulness and presence in classrooms and clinics, and pressed institutions to use research to guide decisions, reduce stigma, and design culturally grounded, community-based responses. Concluding, she appealed for sustained collaboration across sectors and for the deliberate hiring and fair remuneration of professional mental-health providers to safeguard learners’ emotional, social and academic well-being.

The symposium also featured a panel discussion on Mental Health in Schools and Universities, chaired by Dr Kenneth Kalani from the Ministry of Health, and bringing together experts including Dr Harriet Abbe, Prof Ane-Marthe Solheim of the Norwegian Institute of Public Health, and Ms Rebecca Namakula from the Ministry of Education and Sports. Panelists underscored the urgency of addressing mental-health challenges among learners, with insights highlighting early substance use among children as young as six, the need for teacher training in mental-health literacy, and the critical role of schools as early-detection points. They emphasised stronger linkages between health facilities and learning institutions, investment in prevention and early intervention, and the importance of equipping teachers, parents and school leaders with the skills to identify and respond to distress. The panel agreed that mental-health support must extend across the entire school community and be backed by policy enforcement, coordinated services and sustained collaboration across sectors.

In her closing remarks, Dr Hafsa Lukwata, Assistant Commissioner for Mental Health and Control of Substance Abuse at the Ministry of Health, urged Ugandans to break the silence around mental well-being and be intentional about seeking help and supporting one another. She noted that mental-health challenges are widespread across schools, homes and workplaces, and emphasised that silence only deepens the burden. Dr Lukwata encouraged institutions to appoint mental-health focal persons and called for sustained dialogue, continued collaboration and proactive efforts to build resilience in communities. She reminded participants that improving mental health begins with individual awareness and collective action, urging them to treat the day’s engagement as a starting point for strengthening support systems across the country.
Health
Parenting Course ends with call for those trained to share knowledge and be good ambassadors
Published
6 days agoon
November 3, 2025By
Zaam Ssali
On 24th October 2025, the 3rd cohort (65 professionals) of the ‘Science of Designing Adaptation and Implementation of Evidence–Based Parenting Interventions’ graduated at a ceremony held at Africana Hotel, Kampala, Uganda. The professionals were advised to be good ambassadors and share the knowledge from the training.
The training is a collaboration between Child Health Development Centre (CHDC) at Makerere University College of Health Sciences (MakCHS) and Ministry of Gender Labour and Social Development (MoGLSD) through their Parenting Agenda Initiative.
The graduation brings the total of those trained to 130 since cohort 1, and marks a significant milestone in the journey of standardising parenting interventions in Uganda and testament of the nation’s commitment to strengthening families and communities.

In his remarks at the graduation, Dr. Godfrey Siu – Senior Lecturer at CHDC, Programme and Course Lead congratulated the participants for successfully completing the intensive parenting course. He said, ‘I am filled with an immense sense of pride and hope, not just for what we have accomplished during the training but the ripple effect this will have across Uganda’.
Dr. Siu highlighted that the course was not conceived in isolation, but is a vital pillar in the ambitious and crucial efforts by the Government of Uganda (GoU) through MoGLSD with an aim to strengthen and standardise parenting interventions in the country.
‘We extend our appreciation to GoU and MoGLSD in particular for the unwavering commitment and steadfast support. The vision for stronger families is a collective one, and leadership by government is its cornerstone. Let us go and build a future where every child in Uganda can thrive in a nurturing, supportive, and loving family’, Dr. Siu said.

Dr. Siu thanked the various partners who supported the training including the ELMA Foundation, Global Parenting Initiative and Uganda Muslim Supreme Council (UMSC); facilitators of the programme, drawn from a diverse spectrum of expertise. He advised the graduands to be champions, as standard-bearers for a new-era of parenting in Uganda.
He also called for support from development partners, donors and GoU in funding the next phase of the critical work noting that investment in parenting is an investment in the health, stability, and prosperity of the nation.
Dr. Herbert Muyinda, Director-CHDC noted the multi-dimensional benefits of the course including standardisation. He said, ‘all researchers dream about their work making impact and influence policy which Dr. Siu has achieved with this training programme’.

The Director-CHDC thanked all partners, MakCHS and CHDC administration for ensuring the success of the training. He commended the participants for the commitment and resilience during the training and expressed hope that they will use the knowledge when they return to their communities and organisations.
Professor Richard Idro, Deputy Principal-MakCHS represented the College administration at the graduation. In his speech he congratulated the participants on the milestone, thanked MoGLSD for entrusting the University with this work and also thanked CHDC for undertaking the programme not only for research but also as a contribution to the nation.
Professor Idro noted that parenting today is so different from what many of us experienced, highlighting that many parents work away from home also spending less time with their children.

He said, ‘teachers and carers spend more time with children therefore standardisation from initiatives like this are welcome’.
Highlighting the new strategy of taking the University to communities and solving societal challenges, Professor Idro commended the CHDC for the work which is well aligned to the aforementioned strategy. He called on the graduands to cascade the initiative learned to the lowest level of local governments for the benefit of the whole population.
He expressed hope that for sustainability, funding of the programme would be included in the government budget cycle to ensure continuity. He thanked the UMSC for the support recognising time that Sheikh Ali Waiswa had spent at the event as a sign of commitment to improved parenting in Uganda.
‘Our children are vulnerable, I hope this training takes us back to the basics of parenting. I encourage everyone to start with their family and share with all those around them’, said Dr. Angela Nakafeero – Commissioner for Women and Gender Affairs who represented the Permanent Secretary-MoGLSD, Mr. Aggrey Kibenge.

She thanked partners, MoGLSD departments, and various government institutions that have contributed to work accomplished to-date. She reiterated the message of the previous speakers to the graduands not to keep what they had learned to themselves but share with others. ‘Don’t keep information acquired, share it, make better parents and raise better families’, she said.
‘The ministry remains committed to the parenting agenda. As a nation we have always stressed the importance of cultural and religious appropriateness; the University is on-board to offer technical knowledge and this partnership will continue to deliver results’, Dr. Nakafeero added.
She invited the Chief Guest, Sheikh Ali Waiswa – Deputy Mufti, UMSC who represented the Mufti to address the congregation.

Sheikh Waiswa reminded those present that holy books including the Quran and Bible prescribed the family as the cornerstone of society giving guidance on how to raise good families.
He warned against the increased violence against children present in our communities. Quoting statistics, he expressed disappointment that children endure acts of violence in places meant to be safe havens like homes and schools with acts committed by people meant to be trusted. ‘Nearly 6 out of 10 girls and 7 out of 10 boys have experienced physical violence, while 35% of girls are affected by sexual violence’, he said.
The Deputy Mufti commended the training course for bridging the gap between research and practice, saying it would revolutionise parenting, strengthen families and in-turn society. ‘Don’t underestimate the power of the work you are doing, as we celebrate, let us remember our blue print is this initiative and training’, he said.
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