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Cancer Patients Spend an Average of Shs 300,000 on a Single Visit at UCI

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To access treatment and care services at the Uganda Cancer Institute (UCI), patients spend on average 300,000 Uganda shillings on a single visit although some spend to as high as 800,000 (Figure 1). This was revealed by a study done by Makerere University in collaboration with the Strengthening Institutional Capacity for Research Administration (SICRA) and Uganda Cancer Institute (UCI) with funding from the Government of the Republic of Uganda through Makerere University Research and Innovation fund (Mak-RiF).

Figure1; Out of pocket expenditure by Cancer stage.
Figure1; Out of pocket expenditure by Cancer stage.

Conducted in 2021 during the Covid-19 pandemic lockdown, this study titled “Impoverishing and Catastrophic Health Expenditure on Cancer Care among Persons affected by Cancer in Uganda” is among the first few in the country to estimate the catastrophic health expenditure among cancer patients receiving care in Uganda.  

The study revealed that patients suffering from Prostate and Colorectal Cancers were the most affected, with their out-of-pocket expenditure greater than 600,000 per visit. Out of pocket expenditure refers to all direct payments for healthcare or services from household income or savings that patients incur at the point they receive health services.

The study also highlighted that a considerable proportion of cancer patients experience catastrophic health expenditure. “Overall, at least half of all cancer patients experienced catastrophic health expenditure on Cancer Care and treatment. 5 out of 10 patients spent at least 40% of their household income on Cancer health care,” the study findings reveal in part. Further, “Cancer patients or households with patients are unable to solely meet costs associated with cancer care. Often they depend on family, relatives, and friends’ support. However, the continuity of support coming through is not guaranteed throughout the patient’s time of sickness.” Speaking during the Dissemination and Stakeholders Engagement at UCI, Dr. Allen Kabagenyi, the Principal Investigator, noted that unemployed patients, who constituted 86% in the study, were among those who spend at least 300,000 Uganda shillings whenever they visit UCI. “This money is spent on buying missing drugs, imaging services, and tests among others,” she added.

Besides digging deep into their pockets to meet the cancer treatment costs, the findings reveal that families often sell their household property like land, animals, homes among others, in order to raise money for treatment and any related care. “The Shs300,000 is for only one visit but remember a cancer patient who is on stage one and two has to visit regularly, translating to almost Shs. 3.6 million in a year,” Dr. Francis Kiweewa, the Director Strengthening Institutional Capacity for Research Administration (SICRA) said.

Participants attending the Blended presentation at Uganda Cancer Institute, Mulago.
Participants attending the Blended presentation at Uganda Cancer Institute, Mulago.

The Assistant Commissioner – Non communicable diseases (NCDs) prevention and control Department at Ministry of Health, Uganda, Dr. Gerald Mutungi said; “At the ministry, we have adopted the approach of evidence-based policy decision making. Therefore, the policy recommendations of this study are well received.”  He further said that as the Ministry waits for the passing and implementation of the National Health Insurance Scheme, researchers need to investigate and come up with measures aimed at cancer prevention and control.”

Dr. Gerald Mutungi, Assistant Commissioner for Health Services – NCDs prevention and Control Department at Ministry of Health, Uganda.
Dr. Gerald Mutungi, Assistant Commissioner for Health Services – NCDs prevention and Control Department at Ministry of Health, Uganda.

Dr. Jackson Orem, the Executive Director of Uganda Cancer Institute, while responding to the study findings admitted to the growing cancer burden, which he said could only be managed through establishing regional Cancer management centers. He said “currently when you look at the statistics of the number of cancer patients we receive at UCI, 15% are from central region while 85% come from up country. What I can say is that we need to decentralize our services so that these people are able to access them with ease in their respective areas.”

Dr. Jackson Orem, Executive Director, Uganda Cancer Institute (UCI).
Dr. Jackson Orem, Executive Director, Uganda Cancer Institute (UCI).

Dr. Nixon Niyonzima, the Head of Research at UCI, said government should have focused interventions of increasing household income so that the patients are able meet the cancer care and treatment related expenses.

Speaking to journalists, Prof. Bruno Yawe, the Ag. Principal College of Business and Management Sciences (CoBAMS) noted that the study speaks to the objectives of Makerere University’s strategic planning framework for the 2020–2030 period, which seeks to enhance a research-led university. He commended the multidisciplinary study team led by Dr. Allen Kabagenyi, saying that the findings were timely especially when Uganda is registering rising cancer related morbidity and mortality. He thanked the Mak-RIF Grants Management Committee representative Dr. Mercy Amiyo, for insights and continued support to researchers at Makerere University.

In Uganda, over 56,238 are living with cancer and more than 21,000 deaths were registered in 2020, according to the Globocan Cancer Statistics report. Further the report shows the top seven cancers  in Uganda including; cervical cancer, Kaposis Sarcoma, breast, prostate, Non-Hodgikin Lymphoma, cancer of the liver and esophageal – account for 70% of new cancer cases. Knowing the catastrophic health expenditure on cancer care is crucially important to design strategies of providing financial protection against the rising medical expenditure by households with cancer patients.

Meet the study team

Left to Right: Dr. Allen Kabagenyi (MAK, SSP); Dr. Francis Kiweewa (SICRA); Dr. Nixon Niyonzima (UCI).
Left to Right: Dr. Allen Kabagenyi (MAK, SSP); Dr. Francis Kiweewa (SICRA); Dr. Nixon Niyonzima (UCI).
Left to Right: Dr. Lydia Nakiyingi (MAK, CHS); Prof. Elizeus Rutebemberwa (MAK, SPH); Dr. Roy Mubuuke (MAK, CHS); Prof. Fred Matovu (MAK, CoBAMS).
Left to Right: Dr. Lydia Nakiyingi (MAK, CHS); Prof. Elizeus Rutebemberwa (MAK, SPH); Dr. Roy Mubuuke (MAK, CHS); Prof. Fred Matovu (MAK, CoBAMS).

 Acknowledgements

This study was funded by the Government of the Republic of Uganda through Makerere University Research and Innovation Fund (MAK-RiF). Special thanks to all the patients, Care Givers and Key informants who participated in this study.   Graduate Assistants Mr. Ronald Wasswa and Mr. Kayemba, Makerere University.

Business & Management

EfD Uganda AGM Endorses Professors Edward Bbaale and Johnny Mugisha for Directorship

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Participants in group photo after the AGM held in Hoima City. Environment for Development Initiative (EfD-Mak) Centre, Makerere University, Annual General Meeting, Glory Summit Hotel, Hoima District, Uganda, East Africa, 18th July 2024-Professors Edward Bbaale and Johnny Mugisha re-elected unopposed as Director and Deputy Director respectively.

Hoima, Uganda – At the EfD-Uganda Annual General Meeting held at Glory Summit Hotel in Hoima District on July 18, 2024, Professors Edward Bbaale and Johnny Mugisha were re-elected unopposed as Director and Deputy Director of the EfD-Mak Centre, respectively.

The EfD-Mak Centre, established in 2018 and officially launched at Makerere University in October 2019, elected the duo during its inaugural AGM. The voting exercise, presided over by EfD Mak Advisory Board member Prof. Eria Hisali, included research fellows, advisory board members, and leadership from the collaborating colleges of CAES and CoBAMS.

“I congratulate colleagues who have offered themselves for the leadership and also congratulate you for winning the trust and support of the AGM. The task ahead of us is enormous, and I hope all colleagues will support you in steering this institution into the future,” Prof. Hisali stated.

Prof. Eria Hisali and Dr. John Sseruyange during the election exercise. Environment for Development Initiative (EfD-Mak) Centre, Makerere University, Annual General Meeting, Glory Summit Hotel, Hoima District, Uganda, East Africa, 18th July 2024-Professors Edward Bbaale and Johnny Mugisha re-elected unopposed as Director and Deputy Director respectively.
Prof. Eria Hisali and Dr. John Sseruyange during the election exercise.

Prof. Edward Bbaale, nominated in absentia by Dr. Alex Tatwangire and seconded by Dr. John Sseruyange and Dr. Ibrahim Okumu, was away on EfD-related activities in Perugia, Italy. Dr. Tatwangire praised the leadership team for their accomplishments, suggesting the continuation of their tenure.

“I wish to nominate Prof. Edward Bbaale for the position of Director,” Dr. Tatwangire said.

Prof. Bbaale’s agent, Dr. John Sseruyange, conveyed his acceptance of the nomination and the vote. “I wish to thank the voters on behalf of Prof. Edward Bbaale. He is ready to continue promoting the work of the centre, strengthen engagement with policymakers, and enhance institutional and capacity-building initiatives,” Dr. Sseruyange announced.

Dr. Alex Tatwangire (Standing) and Dr. Florence Lwiza during the nomination exercise. Environment for Development Initiative (EfD-Mak) Centre, Makerere University, Annual General Meeting, Glory Summit Hotel, Hoima District, Uganda, East Africa, 18th July 2024-Professors Edward Bbaale and Johnny Mugisha re-elected unopposed as Director and Deputy Director respectively.
Dr. Alex Tatwangire (Standing) and Dr. Florence Lwiza during the nomination exercise.

Prof. Johnny Mugisha, nominated by Dr. Florence Lwiza and seconded by Dr. Vincent Ssaajabi and Dr. John Sseruyange, was declared Deputy Director-elect. Prof. Mugisha expressed his gratitude, stating, “It is an honor to be given the responsibility to keep on the driving seat of the EfD Mak Centre. I derive my confidence from the existing structure, our focused advisory board, and the commitment of our research fellows and administrators at the centre.”

Prof. Mugisha emphasized his commitment to advancing the Centre’s goals. “The experience we have enjoyed in the last five years gives us confidence that we shall move the centre to higher levels. We have growing interest from our partners and collaborators within Makerere and beyond. I accept this responsibility as the Deputy Director,” he affirmed.

Prof. Johnny Mugisha, the Deputy Director- elect. Environment for Development Initiative (EfD-Mak) Centre, Makerere University, Annual General Meeting, Glory Summit Hotel, Hoima District, Uganda, East Africa, 18th July 2024-Professors Edward Bbaale and Johnny Mugisha re-elected unopposed as Director and Deputy Director respectively.
Prof. Johnny Mugisha, the Deputy Director- elect.

He also acknowledged the strategic direction outlined during the AGM, vowing to add value and present significant advancements in the next five years.

The EfD Mak Centre’s leadership structure is unique, with a Director and Deputy Director stemming from different colleges due to the collaborative nature of its founding between CoBAMS and CAES. This arrangement ensures that while the Centre is structurally hosted by CAES, the Director comes from CoBAMS and the Deputy Director from CAES, promoting balanced representation and collaboration.

Jane Anyango is the Communication Officer EfD Uganda

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Public Investment Management Centre of Excellence awards certificates to 30 Officials

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Dr. Peter Babyenda (Front Row Right) and Dr. Willy Kagarura (2nd Row 2nd from right) pose for a group photo with participants. Public Investment Management Centre of Excellence (PIM CoE), College of Business and Management Sciences (CoBAMS), Makerere University, Kampala, five-day training workshop for public officers from various government agencies and universities, 1st-5th July 2024, Jinja, Uganda, East Africa.

The Public Investment Management Centre of Excellence at the College of Business and Management Sciences, has successfully concluded a five-day training workshop for public officers from various government agencies and universities. The training, held in Jinja, was attended by 30 participants who received certificates of completion at a closing ceremony on July 5, 2024. The event was graced by the Principal of the College of Business and Management Sciences, Makerere University, who delivered closing remarks and awarded the certificates.

In his closing address, the Principal expressed deep gratitude and pride, thanking the Ministry of Finance, Planning, and Economic Development (MoFPED) for their generous financial support, which made the training possible. He highlighted the Ministry’s crucial role in identifying and nominating participants from various government bodies, emphasizing the importance of professional development in improving public investment efficiency and effectiveness.

Prof. Edward Bbaale (Right) presents a certificate to one of the male participants. Public Investment Management Centre of Excellence (PIM CoE), College of Business and Management Sciences (CoBAMS), Makerere University, Kampala, five-day training workshop for public officers from various government agencies and universities, 1st-5th July 2024, Jinja, Uganda, East Africa.

The Principal also extended special thanks to the Permanent Secretaries, Vice Chancellors, and Executive Directors of the participating institutions for recognizing the significance of the training and nominating their staff to attend. He commended the dedication of the faculty members from Makerere University, MoFPED, and the National Planning Authority for their expertise and time, which ensured a fruitful learning experience for the participants.

Addressing the participants, the Principal lauded their commitment and resilience throughout the week-long training. He noted that the program equipped them with essential skills and knowledge in Public Investment Management (PIM), including project preparation, execution, procurement, Public-Private Partnerships (PPP), monitoring and evaluation, and integrating climate change, social, and environmental risk management in project preparation.

Prof. Edward Bbaale (Right) presents a certificate to one of the male participants. Public Investment Management Centre of Excellence (PIM CoE), College of Business and Management Sciences (CoBAMS), Makerere University, Kampala, five-day training workshop for public officers from various government agencies and universities, 1st-5th July 2024, Jinja, Uganda, East Africa.

He encouraged the participants to view this training as the first step in their journey to becoming experts in PIM, emphasizing the importance of continuing education through advanced modules in Financial and Economic appraisal of projects. The advanced training, conducted in collaboration with Cambridge Resources International (CRI) and Queens University in Canada, offers a tripartite certificate from Makerere University, MoFPED, and Queens University.

In his remarks, the Principal highlighted the broader scope of the Public Investment Management Centre of Excellence, which extends beyond training to include research, outreach activities, and advisory services to the government. He announced the Centre’s ongoing efforts to revise the Development Committee guidelines for MoFPED and assess the performance of projects selected since the first National Development Plan (NDP I). Additionally, he proposed organizing a one-day Public Investment Management Conference in October 2024 to evaluate the current state of public investments in Uganda and develop future strategies.

Prof. Edward Bbaale (Right) presents a certificate to one of the female participants. Public Investment Management Centre of Excellence (PIM CoE), College of Business and Management Sciences (CoBAMS), Makerere University, Kampala, five-day training workshop for public officers from various government agencies and universities, 1st-5th July 2024, Jinja, Uganda, East Africa.

The Principal concluded by congratulating the participants on their achievement and expressing confidence in their ability to effect positive change in the management of public investments in Uganda. He acknowledged the invaluable support of the faculty, mentors, and coaches, as well as the excellent work of the PIM CoE Secretariat, headed by Dr. Willy Kagarura.

As the training workshop came to a close, the participants left with a sense of accomplishment and a renewed commitment to enhancing public investment management practices in Uganda, contributing to the country’s economic development and prosperity.

Prof. Edward Bbaale (Right) presents a certificate to one of the male participants. Public Investment Management Centre of Excellence (PIM CoE), College of Business and Management Sciences (CoBAMS), Makerere University, Kampala, five-day training workshop for public officers from various government agencies and universities, 1st-5th July 2024, Jinja, Uganda, East Africa.

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2,000 Ugandan Households to Participate in FamiLEA Project

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Prof. Edward Bbaale, Principal of the College of Business and Management Sciences (Seated 2nd Right) and Dr. Stephen Wandera, the Principal Investigator (Standing Rear Right) and other partners at the training on 1st July 2024. School of Statistics and Planning, College of Business and Management Sciences (CoBAMS), Makerere University, Kampala Uganda, Remaking of the Family in East Africa (FAMILEA) training for Research Assistants, 1st July 2024, Kabira Country Club, Kampala Uganda.

Scholars from Makerere University, in partnership with researchers from Europe, have launched the Remaking of the Family in East Africa (FamiLEA) project, focusing on 2000 households in the Kampala Metropolitan Area. This 3-year research initiative, which began on July 1st, includes households in Kampala, Wakiso, and Mukono Districts and will continue until mid-2027.

The FamiLEA project examines families and the factors influencing changes in family structures. This research responds to the rapid and significant changes in family dynamics across Africa, including innovative kinship practices.

Dr. Stephen Wandera (Left) with participants at the training. School of Statistics and Planning, College of Business and Management Sciences (CoBAMS), Makerere University, Kampala Uganda, Remaking of the Family in East Africa (FAMILEA) training for Research Assistants, 1st July 2024, Kabira Country Club, Kampala Uganda.

Dr. Stephen Wandera, the Principal Investigator (PI) from Makerere University, stated that enumerators will conduct door-to-door data collection using structured questionnaires. “Our enumerators are students from Makerere University’s Population Studies program, both undergraduate and postgraduate. We expect them to gain valuable field experience and provide validated results,” Dr. Wandera explained during the training.

The study focuses on household changes such as marriage, divorce, intermediate relationships, and networks to understand the reasons behind family changes in East Africa. Following data analysis, dissemination meetings will be held with stakeholders, including government ministries, departments, and agencies.

Participants pose for a group photo. School of Statistics and Planning, College of Business and Management Sciences (CoBAMS), Makerere University, Kampala Uganda, Remaking of the Family in East Africa (FAMILEA) training for Research Assistants, 1st July 2024, Kabira Country Club, Kampala Uganda.

Earlier this year, a stakeholders’ meeting in Kampala included representatives from the Ministry of Gender, Labour, and Social Development and the Uganda Bureau of Statistics. Researchers will submit reports to policymakers and prepare policy briefs to support informed policy-making and programming.

Yonatan N. Gez, Co-Principal Investigator from ISCTE University Institute of Lisbon, Portugal, highlighted that the FamiLEA project is being conducted in both Kenya and Uganda, funded by the Swiss National Science Foundation. This interdisciplinary project involves scholars from demography, anthropology, political science, geography, and history, collaborating with universities from Switzerland, France, Kenya, Canada, and Portugal, with Makerere University as the key collaborator.

Participants pose for a group photo. School of Statistics and Planning, College of Business and Management Sciences (CoBAMS), Makerere University, Kampala Uganda, Remaking of the Family in East Africa (FAMILEA) training for Research Assistants, 1st July 2024, Kabira Country Club, Kampala Uganda.

Gez noted, “We will conduct extensive surveys using both qualitative and quantitative methods in Nairobi and Kampala. Given the project’s focus on family structures and their transformation, religious and cultural leaders will play a key role in the study.”

The survey will include parents and guardians from 2000 randomly selected households, targeting individuals aged 18 to 64. The questionnaires will cover topics such as intermediate networks, emotional connections, and the impact of these factors on family changes.

 Prof. Bbaale, the Principal of CoBAMS shares a light moment with Dr. Stephen Wandera the PI of the project. School of Statistics and Planning, College of Business and Management Sciences (CoBAMS), Makerere University, Kampala Uganda, Remaking of the Family in East Africa (FAMILEA) training for Research Assistants, 1st July 2024, Kabira Country Club, Kampala Uganda.
Prof. Bbaale, the Principal of CoBAMS shares a light moment with Dr. Stephen Wandera the PI of the project.

Prof. Edward Bbaale, Principal of the College of Business and Management Sciences (CoBAMS), officiated the training. He emphasized the alignment of this research with Makerere University’s strategic direction of being a research-led institution. “This research is within our university’s strategic direction, and I congratulate all the principal investigators for securing the grant,” Prof. Bbaale said.

Prof. Bbaale also highlighted the importance of international collaboration in research, encouraging scholars to pursue similar research projects. He advised enumerators to exercise patience, intelligence, and care in the field to ensure high-quality research findings.

On behalf of the university, he thanked the African Population and Health Research Centre for their collaboration with Makerere University. “Engage with line ministries and the private sector to ensure the implementation of the research project’s recommendations,” Prof. Bbaale urged researchers.

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